The last few days have been kinda crazy, and I’ve been in alot of pain (nothing new). Nancy and Phil are visiting from Ontario which is totally awesome! We’re going to play Password (that old game!) in a bit!
The second night of “Rent” was, if possible, even better than the first! It was really ’emotionally charged’ because it was their last night and all. I totally loved it!! One of the cast members gave me a picture of the whole “Rent” cast annnnnddd it was signed (OMG!!) by all of the cast! It is so amazing!! In a few years, I can say ‘Oh I have so-and-so’s autograph from when they were in high school’ and it will be worth so much! And that’ll probably prove true! They are so unbelievably talented! Sigh, I wish I could see “Rent” again.
Went to a screening of ‘Under Our Skin’ at Quinnipiac University (wow! what a name hunh? I think it’s native probably!), which is about 10 minutes away from here. The movie is all about Lyme Disease and I would totally encourage all of you to see it, not just because its about Lyme and if you don’t know about it, it may come back and bite you (no pun intended!), but also it is a fantastically done film! It follows a number of people battling Lyme, and covers the controversy and new research, as well as other aspects of the topic. The girl who put on the showing, Monica also has Lyme disease and was super nice! She has a PICC line too, incidentally! She’s really interesting and really knows her facts! Quite impressive!
Today was okay. Went to the library for a bit and then came home. Basically. Its kinda dismal out there, all rainy and cloudy and dark! Ah well. The sun will come out tomorrow right? HA!
LauraApril 11, 2009 at 10:58 pm
NICOLE! I miss you. Oh God, I miss you. Tonight I am going to the Spring Fling at the Berry Barn, and I will be thinking of you all night. Seriously. Reading your blog has been so unbelievably inspiring for me and I want to say thank you so much and keep it up! I’ll write you an email in the next few days to totally get us caught up but for now I just thought I’d say ‘hey!’ I love you lots girl xxoox
-Laura Gerein (aka Maria from 12th Night)
PS. I saw RENT here in Victoria when Vic High did it and it was SOOO amazing! xooxReply
nicolaApril 11, 2009 at 11:11 pm
MY LAURA! omg how goes darlin!? what spring fling!!?? thanks for reading my blog! i’m glad you like it :D. i miss you so much darlin! i’d totally love it if you emailed me (i’d email you but i’m not sure if ihave ur addy! i mean, i THINK i do, but i think i added all those addy’s and forgot to say who they were!!! i knwo i’m dumb haa. miss you darlin!
wait? vic high did rent! omg when? xoxReply
daisysmumApril 14, 2009 at 12:23 am
I made it to the Sooke screening of ‘Under our Skin’ and it was amazing. After your diagnosis I watched bits and pieces of it on youtube (and actually found some other interesting Lyme stories there) but it was really amazing to watch the whole thing in a theater with other people – including those bits I missed from the youtube clips.Reply
I was so appreciative to see two political figures very much behind the cause of lobbying for Lyme action, or recognition – or whatever you call the daunting yet simple mission that is ‘providing proper treatment and diagnosis’ for Lyme patients. I can’t believe what you have been through.
But I do have a question for your mom and you, one that I asked the MLA doing Q&A, and that is ‘what can regular people do to get you care in Canada?’ Who should we be writing – what doors need knocked down? It seems that because no one is taking responsiblity, in large part that blurs things? I have written Blood Services asking for more information on Lyme screening.
Everyone *should* se that film because when you come out of it the one question in your head is ‘how do I explain what I just learned to other people in a few sentances!’.
So I am rambling, but I want you to know that we are HERE. Often here with wide-eyes not believing that what you are all going through is possible, but we here.
Rent sounds like an amazing opportunity – so cool. I remember seeing Caberet years ago and being completely captivated. You are also sooo talented, I think your composing skills coupled with your wisening soul and clarity of words will bring great things to the world in coming years. Can’t wait.
Hugs to you, prayers for that stupid pain to go away. Kisses to Chris, we’ll be sending a new little package later this month.
nicoleApril 18, 2009 at 12:11 am
aww emma i miss you so much! and the girls! and patrick! give them all my love! when i get home u have just gotta come visit me at home (prettyy please) or i’m inviting myself over :D. either way its been way too long!! i’m glad u liked the movie tho! i hear its good! lov eyou so mcuh!Reply
LisaApril 18, 2009 at 9:51 pm
wow, i wish i could have been there to see Rent! sounds amazing! can’t wait to hear more form you the next time we talk!
i’ve seen the movie under our skin! it was really well done! we played it at the fundraiser! it made me sad, the girl (i can’t remember her name) the blonde one, she was really skinny! i think she was from california or florida! she reminded me of you!
i know you’re pulling through and we’re all thrilled back home that you’re making progress!
love you so much chica!Reply
~ Lisa xoxo