Archive of ‘family’ category

I love you, Dad.

Life begins with a promise. It is promised, when you are born, that one day you will die. You might spend 20 minutes on Earth, or revolve around the sun 60 years, or tomorrow, or 3 weeks from now. I guess in order to keep living, we pretend this isn’t true, like when you’re rereading a great book and try not to think about the ending you know is coming, so it won’t spoil the journey. There feels like there is always another tomorrow, and one after that, and the one after that…on and on unto the end of your imagination.

I became aware I was a mortal at a very young age. I was diagnosed with a genetic condition which predisposes me to tumors when I was 3 (that’s when I first remember it being explained to me). I became aware that tomorrow wasn’t promised. That there was only one promise the planet had yet to keep; that I would die. That we would all die. The first promise, my birth, had been fulfilled, and every moment was a gift. I lived every day after that with the intention of filling every second of existence with an infinite infinity of moments, memories, love.

It was easy. It was impossible. I failed. I succeed. I tried, though, and that’s the most important part. I try.

I tell my parents I love them, and hug and kiss them every night. I say goodnight, as though this might be the end of the Earth’s promise. That the tomorrow which is just dreams away might not be waiting for me. That tomorrow might move on without one of us. I’ve never told them that when I said “goodnight” and “je t’aime”, I was really whispering in my heart “goodbye”. I never wished to say a last goodbye.

So I am not wishing my father goodnight. Or goodbye. I am whispering to him with every breath we breathe together in our existence that I love him. And those are the words that have always meant everything and encompassed all.

I can’t even bring myself to type the word. That word. The word that is so final, so absolute, that once I type it, I won’t be able to see from the tears that roll down my chin. I’m not ready for a salt-stained keyboard. So I won’t. My father is taking a journey, a journey to a somewhere, a somewhere neither of us understands. He has stage 4 lymphoma. 2 weeks ago he was flummoxing me at Scrabble with his funny made-up words, eating dinner together, teasing me about how much onions I put in everything, walking, buying groceries, reading, snuggling with me. He was doing the ordinary things that make every moment extraordinary, and make up our infinity. He also went profoundly deaf, a side effect of the chemo. So we were also playing like the worst, most hysterical version of “Telephone” the planet has ever seen. So much was lost in translation, in deafness, but the love was not. Last week, we think he blacked out or his heart stopped, causing him to have a car crash (no one was hurt. not even him.). He went to ER, where he seemed alright, if a little confused and “odd”. But something as “off”. They admitted him, and he went downhill so quickly. He got a pacemaker, to combat the effects of the chemo, which were finally rearing their ugly head. After the surgery, he was very tired. A kind of tired which frightened me. Dad would wake up for a few minutes, maybe eat a little something, smile at me or say a little something, and then sleep again. Today he did that less. He is slowly walking away from me and I cannot catch up.

I’ve spent the past few days bawling at inopportune times, and wetting my dad’s pillow with tears (sorry-not-sorry). I need to make these moments even more infinitely infinite than they always have been. Because I need to store them in my heart.

I do not know how much time he has left with us. I never have. It is an unknowable thing, and we are blessed with this ignorance. Because the knowing would break us. It is breaking me. Cancer is terrifying because it makes you see the final promise looming ever-nearer.

He once told me he never imagined having children, but that he couldn’t imagine his life without me. <3

There is never enough time to be with the ones you love. A thousand lifetimes and the last “I love you’s” would still break my soul. I am so grateful for being a part of my Dad’s incredible journey on Earth.

And feel deep gratitude and love for all possible moments we’ve shared together, past, present and future <3.

 

Oh Hai.

Hi guys. I know, long time no talk. I feel a little awkward writing this, like when you run for the first time after taking a long break. It takes a little while to warm up, to remember the way words sound coming out of your mind with a click of keys. I keep hitting the backspace button…which is something I abhor. As you can probably tell. I’m a ‘stream of consciousness’ kind of girl. I don’t really know how to fill you in on all the things that have been happening in my life, or to explain why I stopped writing for awhile.

You know how when you’re reading a book, and you get an inkling as to where the story is heading. Foreshadowing. Or maybe you’re a hopeless romantic and you hope the girl ends up with the guy in the end, and the run off into the sunset, even though this is a post-apocalyptic zombie novel, and it’s looking like 90% likely that the said boy is possibly undergoing zombification, and you know in your heart it might not end that way. But you keep reading anyway. Hoping the ending would be satisfying, even if it turned out differently?

Writing about things that happen to you is kind of like that. But there are less zombies in my life, which I’m not sure is helping ;). I started this blog in 2008, when I needed something to keep me moving forward. That thing was words, that thing was things I didn’t remember doing, that thing was sharing all the myriad of wonders and pains and progress and fashioning all of that into hope. I wanted to be able to keep writing, and one day, I’d have a happy ending. I know how that ending will look. I see it so clearly. It ends with me quite literally walking off into the sunset, with health, with hope, and a future full of possibilities. So far I’m looking at 2/4, so not too shabby. But to be honest, this past year, which shall henceforth be known as the “year of the loud silence”, I was so ready for this chapter of my life to be over. I wanted to write a new story, a story about a girl going to university, and seeing the world, and taking up fucking jogging or whatever the kool kids are doing these days (okay, I know it’s not jogging…but I digress).

I wanted to be better the day I got sick. And the day after that. And every day for the past *8* years (oh, fuck. I haven’t written that out before. that’s scary).

When life throws you a curve ball, sometimes you have to shout “PLOT TWIST” and keep moving on. In an entirely new direction

So that’s why I’m writing again. Because I’m getting better, my body is taking it’s sweet time. It’s time for a change in perspective.

To stand on my shoulders, and look backwards, and stare through walls, and shake jars filled with wishes.

And now I have exactly 0 clues as to how I’m going to explain what has been happening. Sometimes a long intro of rambling helps but, nope. Okay, deep breath.

My dad has cancer.

Fuck.

I hate typing that. I hate the way those words go in the same sentence. They don’t belong. The way the present tense links my father to another terrible disease. On top of Lyme disease and other fun things like that. And because my father doesn’t do things by halves, he has two kinds of cancer that don’t really go together, like orange stripes and teal polka dots on the same bow tie [although, come to think of it, my quirky father just might think those patterns go swimmingly. you can see where I get my aesthetic from ;)]. I hate watching him suffer. The man has never taken a sick day from work in his life before this. I didn’t understand how terrible it is for my parents to watch me be so sick. I know now.

As usual, it took forever for him to be diagnosed. This seems to be a theme that’s developing. He was in hospital for 2 months, where amazing oncology nurses cared for him, and almost magically brought down the swelling in his leg, removed water from on his lungs, and removed part (all?) of the tumour on his calf. He’s home now, doing a better, and going in for round 4 of chemo later this week. There is wonderful supports in place for people who have cancer, so thankfully he’s being taken care of pretty well. Like the witch in Hansel and Gretel, I’m trying to fatten him up by cooking all sorts of yummy things – although we’re still working on the candy house. We’ve tried many gingerbread recipes, and none have yet been a satisfactory replacement for drywall ;).

I have 13% battery life here, and I know you all are going to think this is a total cop-out, but I think I’m going to need to explain about what I’ve done and where I’ve been in another post. I set out with the best of intentions to squeeze much amazingness into one post. I didn’t quite manage. Wasn’t from lack of trying. Zombies and gingerbread men and plot twists kept getting in the way…you see what I have to deal with!? C’est dans la lune!

The highlights? Singing in an amazing Young Adult choir. Going to the Hansa clinic (in Kansas!) for treatment. Doing my part to help Elizabeth May’s Lyme disease bill pass. Joining in the 25,000 Tuques project for refugees coming to Canada. Progressing to floor yoga! Cracking the perfect gluten-free vegan bread. Starting a shop for my hand-carded batts on Etsy. Knitting socks. Many socks. Visiting Finnerty Gardens in every season. Reading so many books, and trying to check out all the material at the library (I’m doing pretty well so far.). Preparing for my grade 9 piano exam, in which I will slay some Mozart, Bach and Debussy music. Connecting with amazing humans. [Whoa. This list is making me feel so grateful right now <3.]

I’ve been very exhausted lately. I know, shocking, right, but this is different. The kind of tired where breathing sometimes feels like quite enough to be doing for one day. Where your migraine-addled mind slows, and thoughts come in puffs of clouds, that vanish when you try to hard. And sometimes you say “Fuck it” and do everything even though your arms feel like they are going to fall off and you need to rest during the remains day. I cut back on some more strong pain meds, and surprise, wouldn’t you know, I’m in more pain now which is also exhausting, but the pain is lessening, for which I am so grateful.

But I’ve learned this year that I am stronger.  Stronger than the things that try to weaken me. Stronger than I knew. I learned I can take a punch; a victory; a set back; courage, and get back up and do it all again.

Get knocked down 7 times, get up 8.

Mr. Max Comes to Town

trying to make Maxwell laugh!

Jenn and Andrew and Mr. Max came down to visit over the weekend, and the family had a lovely afternoon together. Max is the sweetest little dude, and he’s growing up so quickly. It feels like he’s ready to take off running or mountain biking any day now :P. I love it when he chatters away to himself in a conversational tone. I wish we didn’t live so far away from everyone…I am getting so used to being able to see everyone all the time. I quite like it!

Amy left this morning and on the train and is en-route back to Ottawa. It was so amazing to be able to visit with her this weekend. I miss my big cuz already. She is just a few clicks away, I know, but Skype just isn’t the same as being able to see someone clearly and have their voice normal, not robo-tized :P.


What with all this relaxing and afternoons of chatting, I have been knitting up quite a storm! I am becoming a regular knitting machine. I have finished so many armbands that I’m kind of losing count. The latest colorway I’ve titled ‘Seascape‘, in reference to the waters off Vancouver Island, and make me a wee bit homesick. Our stay is drawing to a close though, so I’m sure I’ll be singing a different tune in a few days.

Seascape

Reflections in a looking-glass pool

Underwater life animated on a historic building

I thought that the days of summer were truly over, but today the sky was an exhilarating riot of vivid blues, stormy grays and white. A mix of sun and clouds, with a touch of rain, and the occasional brilliant-eye-squinting ray of sunshine. Dad and I went down to the Inner Harbour, walking along one of the few paved paths in Victoria that is in a moderately tranquil location.

Regal Parliament, resting on borrowed lands

We walked along the smooth path, taking in the sights like any good tourist. It is noisy in the Inner Harbour, with the sea planes taking off towards the distant mountain, motor boats tootling around, people laughing and skateboarding, biking, dogs.

no school like zee old school

The one thing that you must listen hard to find, to separate it from the roars of city life, is the sound of the ocean, persistently lapping against the raised concrete path. I wonder what this place looked like before the shoreline was smoothed out and raised up. Were there beaches paved over, and did they use the smooth pebbles littering those ancient beaches to decorate the gray cement? A small piece of the bay is still intact, where you can see the remnants of crystal pools of green water, which carve holes in the rock-face. There are no big waves that rock into the Inner harbour any more. Not since the extension and creation of the breakwater, a few kilometers away. The water feels almost stagnant, until some boat or plane disturbs its’ surface. Just remember that this water is also full of raw sewage, one of Victoria’s very dirty secrets. Yes, that’s right, in the historic capital of this great province, our toilets flush right into the once pristine coastal waters. Pollutants don’t belong here. Not anywhere.

looking-glass pool
We strolled across the Blue Bridge, a first for me. I’ve never crossed from Esquimault to Victoria on foot or wheels. From there, Solstice Cafe, a haven of organic and homemade (many vegan!) delights, is just a few stoplights and a hill away. Steaming cups of rich cocoa, and a granola bar. Isn’t that the definition of culinary heaven? 
history unknown
I have always been fascinated by this building front on Pandora. Only the historic front remains, an eerie skeleton, a face with no body, a lid without a box. Ironically someone painted a few blue pacman on the front.  In the good old days of my freedom with strong legs and a healthy sense of adventure and liberty (always willingly accepting serendipitous situations as they arrive), I used to think to myself that the bodiless building would make an incredible picture, or a sweet backdrop for a photo-shoot. Finally, camera in hand and blue sky to boot, I captured the haunting beauty of the place on film a plastic memory card. 
I was so exhausted when we came home, although I am trying not to show it. We started my IV antibiotics a few days ago, after almost half a year without them. The medicine is caustic, and burns my heart and veins as it enters my blood stream. I feel weighed down with sickness, as though my bones are suddenly filled with lead instead of 900 mg Clindamycin.
When in sickness or pain, try chanelling your frusteration into a creative outlet. 
Don’t speak the anger in your mind and body, but instead try to look at the flipside, turn everything terrible into something good. 
An example? Today I am really suffering, and I feel like crying with the pain of the medicine going into my heart and neck. 
But someday, when I’m a doctor, and I decide to put a patient on a drug with a biting, bitter, derisive and acerbic personality, I will be able to understand their suffering. 
I am being given the power to heal, through the knowledge of suffering I am receiving. 
A further plus side is my extension tubing is 14 inches long, leaving me plenty of room to knit!
Once you start moving in a postive frame of mind, everything become lighter and warmer in my mind. I hope it can do the same for you.
I channeled my pain in sewing this afternoon. I have many incredible animal-print tees from the Sierra Club, that Dad used to bring home for me, some of which I have had since kindergarten. The sky blue and navy octopus shirt, which is too small for me and a bit faded, has just been recycled into a trendy skirt. Cut off the sleeves and neck, added a bit of denim on the sides from a pair of pants I cut off into shorts, and created a waist band from a faded black stretch shirt. I will post pictures when I have it fitted and on ma body! Should be pretty sweet once it’s done…and all recycled…how cool is that? 
<3

Wait for the Cake!

18. Holy shit. I can no longer laugh at my friends for being ‘old’. I don’t feel a great epiphany or awakening or anything of that nonsense, but rather the same as I did a few days ago, much to my disappointment. I was hoping that I would magically be healed on such a very important day- sort of the reverse of Cinderella turning back into her old self. Alas, Disney gave us all rather impractical solutions to our problems.

I had a really wonderful time on my birthday the other day. Nancy and Phil came down from up Island for the day, and we had a big family dinner. My auntie and uncle went with me to this seriously awesome wool shop downtown called “Knotty by Nature“, which has everything fiber you could possibly desire, while greatly supporting our local sheep and shepherds! Now when I go into a wool store, I simple must touch everything. There are all these strange and wonderful blends of fiber…merino, cashmere, bamboo, linen, alpaca, kid mohair…each with their own addictive feel and story. After much stroking and color combination, I finally decided on 4 braids of unspun wool (the colors on my lap in this picture) in a blueberry, sky blue, stormy gray, and deep lilac. I can’t wait to start spinning them! I haven’t used a drop spindle in a very long time (actually, a decade), but the motion is one that comes relatively naturally. Just need to get my hands on one, and then I will be set.

Rows of dyed wool braids, and hand-dyed bits below.

After our sojourn to the yarn store, we arrived home in time to start dinner. The menu-> veg Phad Thai, which is possibly my favorite food ever, and for dessert a Vegan Carrot Cake with Coconut Cream frosting. A unique culture-clash. Heaven. We tried the pressed tofu, which is probably the tastiest ‘lil protein pack I have ever had the pleasure of sampling.

Tossing in the sprouts…

Crushed peanuts, lime juice, bean sprouts, tamarind, garlic, tomato paste: these flavors jump right off the plate, fresh from a well-seasoned wok. 

A wish.

Like most birthday girls, I find the wait for the cake almost impossible. No matter how fine a main course, or salad, it is the desert that is the show-stopper.

After much searching and deliberation, I adapted this recipe from one I found on the nakedeats Blog; Community Vegan Carrot Cake.

~Naked Carrot Cake~

Ingredients:
    ⁃    2 1/4 cups all purpose flour  (1.25 cup AP, 1 WW)
    ⁃    1 heaping T cinnamon
    ⁃    2.5 teaspoons all spice
    ⁃    2 teaspoons fresh-ground nutmeg
    ⁃    1/2 teaspoons cardamom, ground
    ⁃    1 teaspoon baking powder
    ⁃    2 teaspoons baking soda
    ⁃    1 teaspoon salt
    ⁃    1/4 cup agave
    ⁃    3 teaspoons vanilla
    ⁃    1 cup olive oil
    ⁃    2 cups finely grated carrots
    ⁃    1 cup crushed pineapple including juice
    ⁃    1 cup shredded coconut
    ⁃    2/3 cup chopped pecans
    ⁃    1/2 cup raisins

Method:
Preheat oven to 350 degrees F. Grind all spices (cinnamon, all spice, nutmeg, cardamom). Mix together the flours, baking soda and powder, salt and spices. Set aside.
Mix the agave with the olive oil in an electric mixer, then drizzle in the fragrant vanilla.
Slowly fold in the dry ingredients mixture. It may seem dry, but not once all the fruits and veggies are added. :D. Add the pineapple and juice and mix. Then add the carrots, coconut, raisons, and nuts. Don’t overland.
Grease and flour a round 9”pan (easiest with a spring-form pan). Pour in the cake batter. Bake for 30-35 minutes, until the cake is pulling away from the sides.

I know it is hard, but let it cool completely before frosting and eating. Gets better with age! ~

The results were sensational: a pleasantly fragrant and fruity cake, not too sweet, but dense and chewy. Just the way it should be. It got rave reviews and clean plates from the rest of the family. A job well done if I do say so! After such an eventful day, the only missing from this picture of happiness was to register to vote! I’ve had a SIN# in the States since birth, so it was easy to register to vote down there, but alas, the next election isn’t until 2012. And I was so looking forward to exercising my democratic rights. When one comes of age, you can vote, and be in a porno, which were both very exciting options, but I stuck with voting :P. I realized that I didn’t have a Canadian SIN#, so I will have to get one very soon so I can register to vote here. Because the elections happen whenever the parties want (a very odd policy, in my opinion. I like knowing we can get rid of people after four years, thank-you-very-much!), there is no set date for an election, but I bet there is a municipal one sooner or later! One can only hope!

All and all, I had a rather wonderful day. For some reason, people seem to enjoy saying “You are only 18 once”, but it is true of every other age as well! Undoubtedly this year will bring me closer to that elusive “health” and the pursuit of dreams beyond. <3

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